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September 24th, 2010
10:31 AM ET
soundoff (3 Responses)
  1. Annie Kate

    I'm glad Sally has an answer and a way forward on her disease. I hope the good doctors find an answer for little Kylie. Dr. Gupta, please keep us up-to-date on how Kylie is doing and if the doctors find an answer for her.

    September 24, 2010 at 9:48 pm |
  2. Vicky, Ottawa

    You've done a good job of bringing us these stories. Happy for Sally, but surprised at how emotionally I responded when you said they had not found an answer for Kylie. She reminds me of some babies I saw early in my career who suddenly developed infantile spasms, and lost pretty much all of the developmental skills that had been acquired in their first year. Fortunately, they eventually responded well to anti-seizure meds. You didn't really answer Anderson's question about how long UDP staff will continue to search for an answer for Kylie. Will they keep following any leads they have or is there a time limit?

    September 24, 2010 at 3:40 pm |
  3. Duke Hullender

    Hey, I saw the little girl on tv and something is causing her to tighten up causing a cycle. Her support flows are not even. It may be a innerfearance. I can see with a sound proff room sheilded may show a result. A muscle relaxer before sleep in sheilded sound room may by my understanding have positive results. Next will need to slowly even out support flows by either socialy or a change in her veiw. Hope this can help.

    September 24, 2010 at 2:00 pm |